People have started asking me questions about specific side effects–I have refused to read about side effects until I have them so there is nothing negative in my head. So I try to tune out these questions– I want a t-shirt that says, “I am not nauseous, I am not in pain, I am a mom of 2 so yes I am tired! Some people–usually strangers or people who don’t know me very well–seem to be searching for the bad side of chemo–there is no bad side of chemo! It is not a walk in the park either. It simply is. And it simply is insurance that I live a very long and active and loving life.
I have cocancer friends–people going through it right now– who think I am foolish for ignoring the info that is out there–I am crossing each bridge as I reach it…
I was never in pain except from tests and surgery. I was never in pain from the cancer. Unless I was pushing on the tumor. And why would I do that?
I have really good drugs which handle most everything. the achy from the newlasta–which for some reason I don’t consider as pain–but it is! That moves up the back from the hips and is gone by day 5
So here is my schedule as it seems to me…
Chemo day 1–feel fine–not even tired really–dry mouth–need water to swallow at dinner
day 2–a little mild stomach so they give me meds with the hydration and the newlasta
day 3–don’t really want to get up–can read, watch tv, make myself food–love the heating pad as the newlasta gives me pain in the hips but really managable-asleep by 7–
day 4–more of the same–asleep by 7–mucositis starts–mouth is sore and raw–
day 5–ok–can run an errand or two–take a walk–make breakfast and lunch for the girls–asleep by 7:30–whoopee staying up late–face starts to break out with tiny pimples–
day 6 –still resting–can cook–take a walk–asleep by7:30
day 7–up and at ’em –run an errand, walk–pick the girls up at school–stay up until 8 or 9
day 8-back to somewhat normal life–still recovering from my surgery.
Today is day 11–I am doing well–plan to do yoga, pilates and walk–did 10 minutes on the elliptical yesterday and I will do it again. K is going to a friend’s house around noon.