4 down 2 to go
YESTERDAY wAS DIFFERENT WE LOWERED MY STEROID USE SO I WAS EXHAUTED AFTERWARDS IN A BRAND NEE WAY. I FOUGT THE DESIRE TO CRAWL IN BED AND WALKED AROUND BH WITH MOM FOR A BIT. ALL OF THE AFTERNOON AND … Read More
YESTERDAY wAS DIFFERENT WE LOWERED MY STEROID USE SO I WAS EXHAUTED AFTERWARDS IN A BRAND NEE WAY. I FOUGT THE DESIRE TO CRAWL IN BED AND WALKED AROUND BH WITH MOM FOR A BIT. ALL OF THE AFTERNOON AND … Read More
A little while ago my oncology nurse, the amazing Angela, asked me to write about my marines. She wanted it for a few of her patients that needed some guidance. Here is what I wrote. I was raised in Religious … Read More
So halfway is not all that easy some days—my rosacea is back in spades–thought that would be helped by the new medicine for it but —NOPE! I get to be bald, heavy, twitchy eyelid and look like the devil. Yikes—But … Read More
I was thinking about this today and I realized a few things—1)there is no shame in being bald–it is completely uncontrollable. –Unless you shave your head.2)I shouldn’t feel shy about being bald it is merely an outward sign of an … Read More
So some of the things that happen are to be expected…but the eyelid twitching–that’s just weird. Today is a soccer day–going for the 2nd game –trying to do comments on the papers from my CW class at school and going … Read More
is remembering that I won’t always feel this way. I will not be exhausted by a trip to the corner and that the idea of the energy required by a trip to the market will not equal that of a … Read More
WEll—a team is building to walk in my honor–we have 14 walkers–we need 25 to do an official team. Some of you are already part of this but if anyone else wants to join–google the walk and join and tell … Read More
mom and I are sitting her waiting the end of this round. I am truly thrilled to feel that I am progressing in this treatment plan. When the 6 chemos are over I then still have a year of iv … Read More
That will feel good I think–I have lost a few eyelashes now–but my hair is growing back and falling out! The hair that is growing in is white/grey or maybe in my hopes it is blond! Ah well—I am going … Read More