My Story Right Now

So now we have facebook families–mine is made up of friends I don’t see frequently. it became a great place to gather for my senior class from high school. I have 77 friends—they are friends and my kid’s friends and … Read More

Okay today I will vent—here is the list of what I deal with –some every day –some only certain times of the 21 day cycle–runny nose all day every dayscarspainful raw tongue–several daysraw throat–several daysraw digestive tract-comes and goescan’t taste … Read More

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Last night I went to a birthday party—This was my oldest/longest friend’s b-day and she celebrated it in style–a restaurant with really yummy food–especially dessert– with her group around her. This group consists of people she has met over the … Read More

people like to use that word to describe chemo–I don’t. It is not cumulative–m body repairs itself asap but what is true is that I am tired of it. I am done with feeling this way. Nice thing about that … Read More

so 4 down and 2 to go–hydrating right now—I am planning on going to K’s spelling bee on Wed—really want to–staying positive… The group is walking on May 8th in LA–team 30 also known as Team L’Amour–you can join us … Read More

YESTERDAY wAS DIFFERENT WE LOWERED MY STEROID USE SO I WAS EXHAUTED AFTERWARDS IN A BRAND NEE WAY. I FOUGT THE DESIRE TO CRAWL IN BED AND WALKED AROUND BH WITH MOM FOR A BIT. ALL OF THE AFTERNOON AND … Read More

A little while ago my oncology nurse, the amazing Angela, asked me to write about my marines. She wanted it for a few of her patients that needed some guidance. Here is what I wrote. I was raised in Religious … Read More

So halfway is not all that easy some days—my rosacea is back in spades–thought that would be helped by the new medicine for it but —NOPE! I get to be bald, heavy, twitchy eyelid and look like the devil. Yikes—But … Read More

I was thinking about this today and I realized a few things—1)there is no shame in being bald–it is completely uncontrollable. –Unless you shave your head.2)I shouldn’t feel shy about being bald it is merely an outward sign of an … Read More